My life with Endometriosis!

Hey Everyone,

A post like this probably seems really out of the blue for me, but I felt that it was important to write, because this is something that happens to 1 in 10 woman. Guess what, I’m that 1 and so at the time that my posts normally go up on a Tuesday, I will patiently and nervously be waiting for my surgery to deal with Endometriosis.

Before I continue, most information provided in this post will be from my own experience living with Endometriosis. Please don’t self-disagnose from my post, if you believe you suffer from Endometriosis, please seek out your GP. Please also keep in mind that this post is not all inclusive.

My Personal Back Story

So, I have been aware that I have Endometriosis since I was about 19. I was in pain all the time and I didn’t understand why. I had never heard of Endometriosis at the time and so went to the GP to see if they could help. I had my first ultrasound and that come up with nothing. So off to a Gynaecologist I went, they diagnosed me then and there.  I had my first surgery when I was 19, in this surgery the doctor burnt off the Endometriosis (I have now heard that this might not be the best solution, but I’m not a doctor so don’t take what I say for absolute fact).  It has obviously been a long time since then, so I am going back again Tuesday 21st June 2016.

I am someone that suffers pain 24/7 because of Endometriosis, but like with most pain related issues, I have good days and bad days. I can only describe the pain (for woman) as period pain but slightly different. For guys (if you do read this post) its like being constantly stabbed in the pelvis all day everyday. Not fun.

Useful Information

Endometriosis Australia is a site that provides information about what can be expected. It also provides information about Endometriosis and support groups, fellow bloggers and events that you might wish to attend. One thing I like about this page is that there is a facts sections. It lists 10 facts that I think are important to understand, I wont list all of them, just a few that I think are important to think about.

  1. There is no cure for Endometriosis
  2. Teenagers are not to young to get Endometriosis (waves quietly)
  3. Endometriosis is NOT and STI

If you are unsure exactly what Endometriosis is, it is when parts of the womb float else where within the body.

My Personal Treatment Plan

I have been trying to help prolong the return of the effects of Endometriosis by being on the contraceptive pill and skipping my period. At the moment I am only having a period every three months. Skipping my period means there is less of a chance for things to go wrong quicker. That being said though, I have always been in pain, even after my surgery.

When it comes to pain management, I have gotten to a stage where I can ignore it most of the time. That does not mean that I don’t feel it, because oh boy its there, it means that I tolerate it and get on with my day. If the pain is really bad (normally when I am lying down trying to go to bed) I will take pain medication directed towards period pain. You might be curious why I don’t take pain killers all the time. This is a personal preference where I don’t want to become dependent on drugs.

When I go on Tuesday, I will be switching to a new (to me) type of contraception. I will now be changing to the Merina. This is a device that is implanted in the uterus. Although this website is directed for US residents, I found it to be useful for basic information about what the Merina is, possible side affects and what it does: Click here

I have never tried this before, but have been offered it in the past. Younger Zoe was put off by it because I didn’t want anything inside of me. This is the exact reason why I never had the Bar implanted.The Bar honestly terrifies me, also two people who are close to me have had nothing but grief with the Bar. So, no thanks.

I am going to be trying the Merina for a couple of reasons:

  1. The pill has messed with my libido and I am not impressed (neither is my BF)
  2. The Merina is meant to be better at prolonging the return of Endometriosis
  3. This will last me around 5 years and will save me heaps of $$$
  4. I need to find a better solution for my pain.

I am super nervous about having the Merina, so of course I asked a few questions during my consultation. (I would ask these again to your Doctor as well, remember what I write isn’t absolute) Things might get a bit TMI for you, so if you do not want to read about these question that is totally ok! But if you are like me and wanted answers, or you might just be curious keep reading. Questions have been bolded so you can skip over them or find what you are looking for.

Will my significant other feel the Merina?

I was given the answer that depending on what is happening, no he wont. If his fingers are there, then yes, he will be able to feel the end of the string, BUT he wont be able to grab it and pull it out (unless they SERIOUSLY try, but I wouldn’t recommend it). This was something that I was super nervous about and so was glad to hear. As for sex, my doctor said her partner didn’t notice a difference, so that is a win!

How long until I can be sexually active again?

Surgery aside (for myself), you can be sexually active right away, there is no cool down period as with the Pill. Once the Merina is in, you’re protected.

How long will it take for my body to settle down?

For older women it takes less time, but because I am a lot younger (22 at the time of posting) it can take up to 6-8 months before everything really settles into place. I will be seeing the doctor a few times over this period to make sure that everything is working as it should be.

Will I still have periods?

While my body is settling down, yes, things will run as normal. After the settling down period periods might fade off and only spotting will happen. This is something that was hard for the doctor to give a solid answer on though because everyone is different. So again, make sure you ask your doctor incase you get a different answer.

What if I want to get pregnant? 

Just see your GP, get the Merina taken out and off you go.

Will I personally feel it inside me?

This was a question that was incredibly important to me, I am already in pain so I didn’t want to feel a different type of discomfort. I was told that the first few days might be a bit uncomfortable, as my body is getting used to the Merina being there. The doctor said that it could be painful, but she also followed that with that she does not normally have period pain, while I do, so I probably wont really notice. After potentially the first week, I should feel no discomfort.

What does the Merina do?

Now, this answer should be taken as maybe a guide, then followed by more research, as I did myself. Basically though, the Merina helps thin the the lining on the womb, making it harder to fall pregnant. But for someone like me, this thinning of the wall makes it harder for the Endometriosis to come back, which is why it has been recommended to me.

For now that is all I have to write! I will hopefully do a follow up post about how everything is going, because I am the only person I know that is having the Merina and the only person (physically) close to me that also has Endometriosis.

If you want to ask me any questions please don’t hesitate to do so! I will answer as best that I can.

If you don’t want to ask questions here please find me on:

Facebook

Instagram

or email me at zoesbeautyescape@gmail.com

I hope to see you next time~!

Ja~ne!

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5 thoughts on “My life with Endometriosis!

  1. My Nonna is getting the Merina because in our family, the women are prone to over thickening of the wall of the uterus. We’ve all only just found out about this haha. Hopefully it is helpful to you.
    And I’ve got the implanon and while I think it’s gross to have it in my arm (I only feel it when I touch it), I haven’t yet had a period so it may have stopped mine all together. But it’s so temperamental so who knows how that would have reacted in your body. Either way I hope that the surgery goes well xx

    Liked by 1 person

    1. Oh wow! I wish you Nonna luck with it! I hope it helps me too, it’ll be weird not taking the pill everyday haha. Yea, it’s not working out for Tash so I figured it would be a no go for me as well. I’m glad to hear that the bar is working for you though! It did go well thankfully and I feel better than I thought I would xx

      Liked by 1 person

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